#DPPMomsDay – Why Instrumental Activities of Daily Living

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Today the Disabled Parenting Project held their annual Tweet Chat for Mother’s Day. With it, it always makes me think about what I would like to see done to better support disabled parents, whether we have cognitive, developmental, psychiatric or physical disabilities. I’ve talked about it over the years. The need to have support in areas that most parents need support in.

So I’d like to make the case that the area that services providers can help most in are the Instrumental Activities of Daily Living.

Cleaning and maintaining the house
Managing money
Moving within the community
Preparing meals
Shopping for groceries and necessities
Taking prescribed medications
Using the telephone or other form of communication

When it comes to disabled parents, these are what’s going to impact our lives and our children’s lives the most. What I propose is that in states we create pilot programs for all disabled parents to access services in these areas. Not just parents at a poverty level either. I’d propose it at least be set at Medicaid Buy-In income limits (250% of federal poverty level).

This would allow disabled parents to work, be married, and still access supports they need. It wouldn’t be exclusive to parents with physical disabilities, or psychiatric disabilities, or developmental disabilities, but accessible to any disability. So for autistic parents, if you struggle with executive functioning to clean and maintain a household, you could access services. If you needed adaptive equipment to move within the community with your children, you could access monies to provide that.

Anyone else on board with this? I need to come up with how to get this started in states. I talked about it with my local MHMR in the past and it was seen as a preventative measure to CPS, but I don’t think measuring as a preventative measure to ‘organic abuse’ or ‘organic neglect’ is beneficial. I’d like to see it as an extension of community living and giving greater access to parenting.

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1 Response

  1. Ashley says:

    This is an amazing idea. I have tears in my eyes at the thought I could have access to a house cleaning service. Definitely agree it doesn’t need to be classified as prevention. While my kids’ needs and rights are important, autistic adults have their own strengths and weaknesses that should be considered also.

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