research

Autism Rates (Revisited)

Posted by on March 31, 2014 at 8:07 pm

(Originally posted as a Facebook post; reposting here nearly a month after the fact so that the information is easily linkable)

I want to direct everyone’s attention to 3 studies that were done with regards to prevalence rates and autism. These 3 studies are older but quite significant.

  1. South Korea prevalence study, May 2011: http://news.yale.edu/2011/05/09/prevalence-autism-south-korea-estimated-1-38-children

    Significance: They looked at ALL students whether they had been provided with special education services prior or not. Large sample size of 55,000 students ages 7 through 12. They found the rate was 1 in 38.

  2. College students on the Autism Spectrum prevalence study, May 2011: http://leftbrainrightbrain.co.uk/2011/05/29/college-students-on-the-autism-spectrum-prevalence-and-associated-problems/

    Significance: The study looked at a large sample of 667 at a single university.
Read more.

1 in 68 with 1:5 girl-boy

Posted by on March 27, 2014 at 2:02 pm

Another CDC post to add to your mix… forgive me…

CDC release

CDC Surveillance Summary

I want to state two things before I get into what I’m actually posting about.

  1. This is not an epidemic. (Statement can also be read as “Vaccines don’t cause autism.”)
  2. Yes, the data is from 2010, but that doesn’t make it outdated. Please remember that 2010 had to end. Individual sites had to compile their data. Those sites then had to send to the CDC. The CDC had to compile that data. Then CDC had to go through records. Then they had to come up with a way to present the information.
Read more.

Fallacy of a Generation

Posted by on February 1, 2012 at 10:38 am

Yesterday,  we were introduced to two new culprits of the greatest fallacy of a generation, Dr. Paul Steinburg and Benjamin Nugent. What is this great fallacy? That Asperger’s Syndrome is nothing more than a social disability that any quirky nerd can fit into. Afterall, every quirky nerd has difficulties in social interaction and usually a preoccupation in particular subject areas.

The fallacies continue to include that nonverbal Autistics are mentally retarded. That “Aspies” when put with “real Autistic” students have lowered self-esteem. That “real Autistics” fail to gain receptive and expressive speech. That no Autistic can have positive outcomes in life, be a police officer, learn to cope with their surroundings.… Read more.

DSM V Under Attack

Posted by on January 20, 2012 at 6:01 pm

BEFORE YOU READ ANYTHING ELSE:

Dr. Lord said that the study numbers are probably exaggerated because the research team relied on old data, collected by doctors who were not aware of what kinds of behaviors the proposed definition requires. “It’s not that the behaviors didn’t exist, but that they weren’t even asking about them — they wouldn’t show up at all in the data,” Dr. Lord said.

Last paragraph from the article below

***WARNING: LONG POST IS LONG. IF IT’S TL;DR, I UNDERSTAND. THE ABOVE IS THE MOST RELEVANT PART.***

Yesterday’s NYTimes article is definitely not the worst propaganda to come out about how we’re either overdiagnosing, or how DSM-V will kill kittens, or how it’s all about the money, but it seems to have created the largest response I’ve seen yet.… Read more.

Call For Papers: Parenting Children with Autism Spectrum Disorders During the Transition to Adulthood

Posted by on December 2, 2011 at 10:50 pm

The following is a Call for Papers, as the title says. However, I am not calling on any parent to submit a proposal. I’m specifically asking that Autistic parents of Autistic teens or adults think about submitting a proposal. If you feel you need help submitting a proposal, please let me know and I’ll be happy to either help you myself or connect you with someone who would be willing to help you.

——————-

Call for Papers for a Special Issue of Narrative Inquiry in Bioethics: Narrative Symposium: Parenting Children with Autism Spectrum Disorders During the Transition to Adulthood

Narrative Inquiry in Bioethics

A Journal of Qualitative Research

Edited by Kelly Dineen, JD, RN & Margaret Bultas, PhD, RN, CPNPPC

Narrative Inquiry in Bioethics will publish an issue devoted to personal stories of parenting children with Autism Spectrum Disorders (ASDs) during the transition to adulthood.… Read more.